Join us on our upcoming webinar series on accessing funding for rare disease research. These sessions are particularly useful for patient groups already working with an academic or research lead!
In this 90-minute online RareChat, we will be discussing international outreach strategies and challenges.
Join us online to explore the essentials of managing your rare disease charity’s finances, from legal compliance to effective financial planning and monitoring.
In this 90-minute online event, we will be discussing different types of Peer Support Programmes.
Join this masterclass for a step-by-step guide on how to recruit the best people to your rare disease patient group!
Join this webinar to learn the essentials of hiring for your charity: from legal setup to strategic skills audits, ensure your organisation is ready to recruit for the right role.
Join this webinar to discover diverse funding sources and learn how to lay the groundwork for strategic and successful fundraising.
Join our RareChat to explore cost-effective strategies for organising inclusive and accessible events
Join us through a series of webinars and discussion sessions, where we'll explore the fundamental principles of genetic testing, delve into the methods and applications available, and provide practical insights on accessing, interpreting and supporting genetic diagnostic results.
Join this event to celebrate another successful Student Voice Prize competition!
Join this workshop hosted by mental health experts Rareminds to learn practical tools on boundary setting, managing expectations and avoiding burnout.
Join this webinar to learn how you can be using AI to help you become more efficient and creative when running your patient group. This webinar will cover the basics of AI, different AI platforms, how to write good prompts and the pitfalls of using AI.